A list of frequently used terms and their definitions, together with the explanation of the meanings of abbreviations that primarily pertain to the measurement of digital health literacy and health literacy, collaboratively developed by the IDEAHL project partners.
A list of frequently used terms and their definitions, together with the explanation of the meanings of abbreviations that primarily pertain to the measurement of digital health literacy and health literacy, collaboratively developed by the IDEAHL project partners.
A list of frequently used terms and their definitions, together with the explanation of the meanings of abbreviations that primarily pertain to the measurement of digital health literacy and health literacy, collaboratively developed by the IDEAHL project partners.
Concept | Definition |
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Global Atlas of literacies for health GALH | It is a systematic collection of data and information that provides a visual and spatial representation of various features and aspects of a geographical area. The GALH is a tool that not only summarises the various literacy tools but presents the empirical evidence for how it has been used or evaluated in different geographical regions. |
Health Literacy (HL) | HL entails people’s knowledge and competences to access, understand, appraise, and apply health information to make judgments and decisions in everyday life concerning healthcare, disease prevention and health promotion (1). |
Digital HL (dHL) | dHL is the ability to seek, find, understand, and appraise health information from electronic sources and apply the knowledge gained to addressing or solving a health problem (2). |
(d)HL | HL and dHL |
Literacies for Health | Literacies for Health in this Atlas refer to different types of HL such as nutritional HL, mental HL, oral HL, Physical Fitness Literacy, Medication Literacy, Environmental Health Literacy, Public Health Literacy, Reproductive Health Literacy, Genetic Literacy, Health Insurance Literacy, Occupational Health Literacy, Chronic Disease Management Literacy, among others. The literacies for health involve: Motivation, knowledge, and competencies to comprehend, evaluate, and apply information about health, thereby enabling the ability to make decisions in relation to personal care and disease prevention (Hernández Encuentra, 2021) |
HL and/or digital HL levels | HL and digital HL levels refer to the level of HL of individuals or groups as measured by scales (measurement tools) developed for the purpose. |
European Union | Austria, Belgium, Bulgaria, Croatia, Cyprus, Czechia, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands, Poland, Portugal, Romania, Slovakia, Slovenia, Spain, and Sweden. |
Beyond EU | Australia, Canada, New Zealand, United Kingdom (England, Northern Ireland, Scotland, Wales), United States of America. |
Health Care/Health-care/Healthcare | Health care/Health-care/Healthcare exist in health system, that consists of all organisations, people, and actions whose primary intent is to promote, restore or maintain health. This includes efforts to influence determinants of health as well as more direct health-improving activities. A health system is therefore more than the pyramid of publicly owned facilities that deliver personal health services. It includes, for example, a mother caring for a sick child at home; private providers; behaviour change programmes; vector-control campaigns; health insurance organisations; occupational health and safety legislation. It includes cross-sectoral action by health staff, for example, encouraging the ministry of education to promote female education, a well-known determinant of better health (3). |
Health Data | Health data is any data "related to health conditions, reproductive outcomes, causes of death, and quality of life"(4) for an individual or population. Health data includes clinical metrics along with environmental, socioeconomic, and behavioural information pertinent to health and wellness. A plurality of health data is collected and used when individuals interact with health care systems. This data, collected by health care providers, typically includes a record of services received, conditions of those services, and clinical outcomes or information concerning those services (5). |
GALH Dataset | The GALH dataset is a collection of data related to levels, interventions, initiatives, practices and policy of (d)HL in Europe and beyond. The individual data points included are related to a specific (d)HL analysis of four different literature reviews. A dataset can contain various types of data, the GALH dataset contains numerical values and text that were extracted from the IDEAHL project literature reviews. |
Social Innovation | Social innovation refers to the design and implementation of new solutions that imply conceptual, process, product, or organisational change, which ultimately aim to improve the welfare and wellbeing of individuals and communities. Many initiatives undertaken by the social economy and by the civil society have proven to be innovative in dealing with socio-economic and environmental problems, while contributing to economic development. To fully tap the potential of social innovation, an enabling policy framework is needed to support public, non-profit, and private actors to co-construct and implement socially innovative solutions and thereby contribute to address socio-economic issues, build stronger territorial resilience, and better respond to future shocks (6). |
Social Services | Social service is a service that aims at promoting citizen’s / client's social wellbeing and ability to function and prevents, reduces, and eliminates social problems (7). |
Best practice | A best practice is a relevant policy or intervention implemented in a real-life setting and which has been favourably assessed in terms of adequacy (ethics and evidence) and equity as well as effectiveness and efficiency related to process and outcomes. Other criteria are important for a successful transferability of the practice such as a clear definition of the context, sustainability, cross-sectional, and participation of stakeholders (8). |
Champions and survivors | Champions = Professionals, services, organisations, municipalities, regions, etc. that published a peer reviewed article in a scientific journal providing evidence of success with initiatives (best practices) in relation to (d)HL ie: the initiatives showed improvement of levels of HL with pre test and post test measurement |
Survivors = Professionals, services, organisations, municipalities, regions, etc. that were less successful with initiatives (best practices) in relation to (d)HL. | |
Initiative | In the context of (d)HL, an initiative refers to a specific program, project, or action undertaken with the aim of promoting or advancing health literacy. It involves a deliberate effort to improve individuals' knowledge, skills, and abilities to obtain, understand, and use health information and services effectively. (d) HL initiatives can take various forms, such as educational campaigns, community-based interventions, policy development, healthcare provider training, websites, apps, or the creation of health communication materials tailored to different populations. These initiatives often aim to address health disparities, empower individuals to make informed decisions about their health, and enhance their overall health outcomes. An initiative may or may not be published in scientific peer reviewed papers and could be led by public or private entities or individuals. |
Monitoring and evaluation tools, scales, measures, methods, and frameworks | Monitoring and evaluation tools, methods, and frameworks in (d)HL that are validated and published in peer-reviewed journals; they measure/quantify individuals’ (d)HL (9) and organisations’ HL and (d)HL environments covering different target populations and services (e.g., the HLS-EU questionnaire, the eHL Assessment toolkit (eHLA) and the eHL Questionnaire (eHLQ), the M-POHL network action or the WHO HL Road Map). |
Private and public initiatives and services | Private and public initiatives and services related to (d)HL regarding testing/assessing, monitoring, training, capability building, education, consulting, development, communication, intervention, care, support, peer support, or community action. A public intervention is one that is initiated, funded, or overseen by a government or public sector entity. It is typically aimed at addressing public needs or societal issues and is funded through public resources.: A private intervention is initiated, funded, or operated by private entities, such as industry, non-profit organisations, or individual practitioners |
KEY CONCEPTS | |
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HL | Health Literacy |
dHL | Digital HL |
(d)HL | HL and dHL |
GALH | Global Atlas of Literacies for Health |
(d)HL SCALES | |
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Ar-eHEALS | Arabic version of electronical HL scale |
3-brief SQ | Three brief screening questions |
BHLS | Three-item Brief HL Screen |
BRIEF | Brief HL Screening Tool |
CHAT | Conversational HL Assessment Tool |
C & CHL scale/CCHL | Communicative and Critical HL scale |
CHLT-30 | Cancer HL Test |
DHLI | Digital HL Instrument |
DNT-15 | Diabetes Numeracy Test 15 |
eHL | Electronical HL |
eHEALS-carer | eHL Scale for Carers |
eHEALS | Electronic HL scale |
EHILS | Everyday Health Information Screening Tool |
eHLA | eHL assessment toolkit |
eHLQ | eHL Questionnaire |
EMHL | Espailove.net Mental HL test for Spanish Adolescents |
FCCHL | Functional, Communicative, and Critical HL questionnaire |
G-HL | General HL scale |
GROHL | Greek Oral HL measurement instrument |
HALS | Health Activities Literacy Scale of NALS |
HAS-A | HL Assessment Scale for Adolescents |
HBP-HLS | High Blood Pressure-HL Scale |
HELIA | HL Instrument for Adults |
HK-LS | Hypertension Knowledge-Level Scale |
HL-HC | HL items from the dimension of health care |
HLQ | HL Questionnaire |
HLQ-SK | HL Questionnaire Slovakia |
HLS19 -Q12 | General HL adapted short form |
HLS19-DIGI | General HL module for digital health literacy |
HLS19-VAC | General HL module for vaccination health literacy |
HLSAC | HL for School-aged Children |
HLS-EU (Q6/Q16/Q25/Q47/Q86) | European HL Survey Questionnaire (nr. of questions in the questionnaires) |
ILS-PT | HL Survey – Portugal |
IMETER | Italian Medical Term Recognition Test |
MAKS | Mental Health Knowledge Schedule |
MeHLA | Danish Mental HL Adolescents questionnaire |
METER | Medical Term Recognition Test |
MHFA | Mental Health First Aid |
MHKQ | Mental Health Knowledge Questionnaire |
MHLq | Mental HL Questionnaire |
MHLS | Mental HL Scale |
MHLW | Mental HL tool for the Workplace |
MHPK-10 | Mental Health-Promoting Knowledge |
MMHLM | Multicomponent mental HL measure |
MOHLAA-Q | Measurement of HL Among Adolescents Questionnaire |
NVS | Newest Vital Sign |
NVS-PTeen | Newest Vital Sign for Portuguese Adolescents |
OHLP | Oral HL Profile |
QUICK-K | An Instrument for Measuring HL in Children |
RALPH | Recognizing and Addressing Limited Pharmaceutical literacy |
REALM | Rapid Estimate of Adult Literacy in Medicine |
REALM-R | Rapid Estimate of Adult Literacy in Medicine Revised |
REALD-30 | Rapid Estimate of Adult Literacy in Dentistry |
SAHL-D | Short Assessment of HL for Dutch Patients |
SAHLPA | Short Assessment of HL in Portugal |
SAHL-PT | Short Assessment of HL for Portuguese population |
SAHLSA-50 | Short Assessment of HL for Spanish-Speaking Adults |
SBSQ | Set of Brief Screening Questions |
S-CCHL | Swedish Communicative and Critical HL Scale |
S-FHL | Scale for Functional HL |
SILS | Single Item Screener |
S-TOFHLA | Abbreviated version of the Test of Functional HL in Adults |
TOFHLA | Test of Functional HL in Adults |
V-HLO | Vienna health literate organisation self-assessment tool |
IDEAHL CONSORTIUM | |
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MDU | Mälardalen University |
SeAMK | Seinäjoki University of Applied Sciences |
UCN | University College of Northern Denmark |
RMIT University | RMIT University |
RMIT University, Europe | RMIT Europe |
CSPA | Consejería de Salud y Servicios Sanitarios - Principado de Asturias |
CE | Consulta Europa |
ISRAA | Istituto per Servizi di Ricovero e Assistenza agli Anziani |
MLHSA | Behoerde Fuer Arbeit, Gesundheit, Soziales, Familie Und Integration Hamburg |
ADIPER | Adi & Salu Sersoc S.L.U. |
CDC | Cáritas Diocesana de Coimbra |
EIWH | European Institute of Women's Health Company Limited By Guarantee |
CEI | Ince Iniziativa Centro Europea - Segretariato Esecutivo |
E-seniors | E-Seniors: Initiation des Seniors aux NTICc Association |
All Digital | All Digital Aisbl |
General acronyms | |
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BMI | Body Mass Index |
EHL | Environmental HL |
EU | European Union |
FHL | Functional HL |
mHL | Mental HL |
OHL | Organisational HL |
oHL | Oral HL |
PTHL | Pharmacotherapy Literacy |
WHO | World Health Organization |
Yr. | Years(s) |
OECD | Organisation for Economic Co-operation and Development |
MHFA | Mental Health First Aid |
USA | United States of America |
UK | United Kingdom |
RCT | Randomized controlled trial |
Chi2 | Chi-Square |
DF | Degrees of freedom |
CFI | Comparative fit index |
TLI | Tucker-Lewis Index |
RMSEA | The root mean square error of approximation |
WLSMV | Weighted least square mean and variance adjusted |
SD | Standard Deviation |
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2. Norman CD, Skinner HA. eHEALS: The eHealth Literacy Scale. J Med Internet Res [Internet]. 2006 Nov 14;8(4):e27. Available from: http://www.jmir.org/2006/4/e27/
3. Hernández Encuentra, E. Alfabetización para la Salud en Red. 2021 [cited 2023 Jul 10]: https://www.fundacionisys.org/es/blogs/formacion/852-alfabetizacion-para-la-salud-en-red
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7. OECD. Social Innovation [Internet]. [cited 2023 Feb 7]. Available from: https://ucndk-my.sharepoint.com/personal/cbt_ucn_dk/Documents/Skrivebord/OECD.pdf
8. The finnish institute for Health and Welfare (2022)
9. Best Practice Portal [Internet]. EU. 2023 [cited 2023 Feb 7]. Available from: https://webgate.ec.europa.eu/dyna/bp-portal/
10. Okan O. International handbook of health literacy : research, practice and policy across the lifespan. 2019. 740 p
11. Buhl Povlsen M, Brun Thorup C, Schack Thoft D, Korsbakke Emtekær Hæsum L, Valkama K, Uitto M, et al. D1.1. Report on (d)HL WP1 . IDEAHL; https://ideahl.eu/wp-content/uploads/2023/03/IDEAHL_D1.1.-Report-on-dHL.pdf
12. Health Literacy Tool Shed [Internet]. [cited 2023 Jul 10]. Available from: https://healthliteracy.bu.edu/.
13. Home - IDEAHL [Internet]. [cited 2023 Jun 6]. Available from: https://ideahl.eu/.